The slogan, "We Are More Alike Than Different," perfectly aligned with my beliefs and what I had been communicating to teachers, our community, our family, and most importantly, to
Dylan.
I wanted him to grow up knowing that he had more similarities than differences with others.
Whenever someone at an IEP meeting pointed out that
Dylan couldn’t do something, I was quick to provide an example of what he could do.
If a child at the park laughed at Dylan and teased him, I would casually say, “You know, Dylan loves playing Nintendo games, and I bet you do too.”
My mission was to point out similarities and Dylan's abilities and to say "despite his disabilites" look what a great kid he is. This became the foundation of our advocacy for him.
The idea of Disability Pride never quite clicked for us when Dylan was younger.
We'd have open conversations about his questions – the size of his tongue, the teasing during reading, the extra
chromosome.
We dismantled myths and challenged low expectations, all while assuring him he could achieve anything (despite his Down syndrome).
Hindsight stings.
It wasn't "despite," it was "because."
It wasn't "despite" his disabilites he was a great kid. It was "because" of his disabilities that he
is the wonderful human that he is.
While nurturing his strengths, I'd inadvertently downplayed a core part of his identity.