Here are some quotes from the recent The Art of Advocacy show.
I'm going to say something really
provocative, I think the disability community is addicted to civil rights. We think that marching in the demonstration or suing somebody is the absolute height of expressing our rights. Those are fundamental pieces, but we have to be pushing beyond that.
Sue Swenson
There are many times as parents we get into our own silos. One of the things I always encourage families to do is, don't create a special PTO organization. Go with the
culture of what's there in your school and embed change there. When we keep ourselves as this separate parents' silo, then we're a special interest group and we diminish our power.
Charmaine Thaner
The fastest change I could ever make was cultural change.
Sue Swenson
I still see so many districts where if they can check off the boxes, they feel like they've done their job. That's where this conversation about cultural change is so critical because we're not advocating checking off boxes. We're looking at the big vision we have for our child and all the kids as far as what rich
futures they're going to have.
Charmaine
Thaner
We had one night a month where we invited anyone in Minneapolis and interested in having supper with us. And then we did just that. And you know, a very short program. Then lots of time to just to talk. That was so much more powerful than anything I could have done with insisting on my civil rights under the IEP, I just think that's were real inclusion comes
from. Sue Swenson
When we had six people attend the school board meeting it was a lot more effective than when one person went. When we had disabled students talk at the school board meeting, guess what? The media picked up on it and we started seeing other people asking how they could help.
Charmaine Thaner
People with disabilities told us they needed not only to be included but they wanted to be valued.
Sue Swenson
It does come back to the human level, in those principles of justice for all, freedom and peace. That's what our vision needs to be based on. Not how many state standards is this child going to reach before they graduate from
high school. Charmaine Thaner